Our First Year Anniversary PDF Print E-mail
Wednesday, 14 October 2009 22:22
taken from http://www.flickr.com/photos/funkybug/2795601840/ via creative commonsCelebrating an important anniversary is always a blessing. The Scleroderma Care Foundation was officially incorporated on 15th October 2008. Its mission to provide support and education for persons afflicted with Scleroderma within Trinidad and Tobago became a reality after months of thought, deliberation and legal preparation. Working alongside my son Adelwyn Holder, I anticipated an organization that would be welcomed and appreciated by many persons who were suffering alone because of the devastating effects Scleroderma.

Our first year has been magnificent. The Lord has been placing the right persons in our path to achieve our vision for our members. Although the Foundation was incorporated in October 2008, the initial months were nothing short of challenging, as the ground work took time. The loss of my friend Jennifer Hannibal, who succumbed to Scleroderma in January 2009, and news of two other Scleroderma related deaths propelled my desire to ‘get the ball rolling’. The Support Group met for the first time on Sunday 15th February, 2009. Five persons and their families and close friends spent time together. There were tears of joy and tears of sorrow that evening… but we were all just grateful that we no longer had to deal with this condition alone. Thank God!

The future of the Scleroderma Care Foundation is indeed ladened with hope and extreme promise. I hope that all Scleroderma sufferers in Trinidad and Tobago, and by extension, the world, would realize the importance of accepting support when trying to fight such diseases, like Scleroderma. I hope that the general public and the health-challenged would realize that quality of life is closely related to healthier life-styles. My greater hope is for all to be educated regarding the difficulties and life-altering effects of Scleroderma on a persons’ life, causing better understanding, appreciation and interaction with such persons.

Today, as we celebrate our first anniversary I pray for the Lord’s continued blessing for the Scleroderma Care Foundation, its members, family, friends and supporters. God Bless you richly with an abundance of good health!

Susan Le Gendre
Co-Founder and Vice-President
 
More articles :

» Ease Inflammation with Strawberries

Not only are strawberries juicy and delicious, they also may lower blood levels of C-reactive protein (CRP), a signal of in the body. High CRP levels are associated with an increased risk of heart disease and stroke, and levels often spike when...

» Lower Extremity Ulcers in Systemic Sclerosis: Features and Response to Therapy

Victoria K. Shanmugam, MBBS, MRCP; Patricia Price, PhD; Christopher E. Attinger, MD; Virginia D. Steen, MD Non-digital lower extremity ulcers are a difficult to treat complication of scleroderma that is often refractory to therapy. They are a...

» 5 Things to Know About Raynaud’s

Having a chronic condition like Raynaud’s requires vigilance. Here are five things that you should know about your condition from rheumatologists who treat it.Stay warm. Wear gloves and mittens and heavy socks whenever you expect to be in a cold...

» Unite Against Scleroderma

On May 1st 2011, the would be holding its first annual "Unite Against Scleroderma" Walk around the Queen's Park Savannah, Port Of Spain. It is our aim to help raise awareness of this rare autoimmune disease and the funding needed to aid those who...

» Silicone and Scleroderma Revisited

Silicone, a synthetic polymer considered to be a biologically inert substance, is used in a multitude of medical products, the most publicly recognized of which are breast implants. Silicone breast implants have been in use since the early 1960s for...

» UTHealth Scientists Closing In On Genes Tied To Scleroderma

A new study designed to test suspected links between genes and two immune disorders could open the door to better ways to diagnose and treat the conditions that affect a combined total of approximately 2.5 million people in the United States, report...

Comments  

 
0 #1 adelwyn 2009-10-16 20:00
It has indeed been a pleasure working with the Foundation. I do look forward to another year of great work, and pray that we can deliver much greater benefit to Scleroderma patients locally.
Report to administrator