Our First Year Anniversary PDF Print E-mail
Wednesday, 14 October 2009 22:22
taken from http://www.flickr.com/photos/funkybug/2795601840/ via creative commonsCelebrating an important anniversary is always a blessing. The Scleroderma Care Foundation was officially incorporated on 15th October 2008. Its mission to provide support and education for persons afflicted with Scleroderma within Trinidad and Tobago became a reality after months of thought, deliberation and legal preparation. Working alongside my son Adelwyn Holder, I anticipated an organization that would be welcomed and appreciated by many persons who were suffering alone because of the devastating effects Scleroderma.

Our first year has been magnificent. The Lord has been placing the right persons in our path to achieve our vision for our members. Although the Foundation was incorporated in October 2008, the initial months were nothing short of challenging, as the ground work took time. The loss of my friend Jennifer Hannibal, who succumbed to Scleroderma in January 2009, and news of two other Scleroderma related deaths propelled my desire to ‘get the ball rolling’. The Support Group met for the first time on Sunday 15th February, 2009. Five persons and their families and close friends spent time together. There were tears of joy and tears of sorrow that evening… but we were all just grateful that we no longer had to deal with this condition alone. Thank God!

The future of the Scleroderma Care Foundation is indeed ladened with hope and extreme promise. I hope that all Scleroderma sufferers in Trinidad and Tobago, and by extension, the world, would realize the importance of accepting support when trying to fight such diseases, like Scleroderma. I hope that the general public and the health-challenged would realize that quality of life is closely related to healthier life-styles. My greater hope is for all to be educated regarding the difficulties and life-altering effects of Scleroderma on a persons’ life, causing better understanding, appreciation and interaction with such persons.

Today, as we celebrate our first anniversary I pray for the Lord’s continued blessing for the Scleroderma Care Foundation, its members, family, friends and supporters. God Bless you richly with an abundance of good health!

Susan Le Gendre
Co-Founder and Vice-President
 
More articles :

» Wheatgrass

Wheatgrass refers to the young grass of the common plant, , that is freshly juiced or dried into powder for animal and human consumption. Both provide , , minerals, vitamins, and . Wheat grass along with , , oat grass and are many times referred...

» Unite Against Scleroderma 2014

For the fourth year running, we will be hosting our annual “Unite Against Scleroderma” Awareness Walk. Scheduled to start from 2:30pm, the Walk would be held on Saturday 3rd May, 2014 and cover one full lap around the Queen’s Park Savannah,...

» arGentis Continues To Expand

But arGentis grew its drug-development pipeline this month with the acquisition of the rights to a rheumatoid arthritis therapy from the - the terms of which, were not disclosed. The treatment was developed at the University of Tennessee Health...

» Scleroderma May Be Initated By Cancer

has reported that researchers at have discovered that some cases of are likely to have been initiated by Cancer.  In a landmark paper published in Science, researchers focusing on a select group of patients with both Scleroderma and Cancer,...

» Sonographic Evaluation of Pediatric Localized Scleroderma Preliminary Disease Assessment Measures

Background: Our earlier work in the ultrasonograpy of localized scleroderma (LS) suggests that altered levels of echogenicity and vascularity can be associated with disease activity. Utrasound is clinically benign and readily available, but can be...

» Is Pulmonary Arterial Hypertension Really a Late Complication of Systemic Sclerosis?

Eric Hachulla, MD, PhD; David Launay, MD, PhD; Luc Mouthon, MD, PhD; Olivier Sitbon, MD, PhD; Alice Berezne, MD; Loïc Guillevin, MD; Pierre-Yves Hatron, MD; Ge´rald Simonneau, MD; Pierre Clerson, MD; and Marc Humbert, MD, PhD;Pulmonary arterial...

Comments  

 
0 #1 adelwyn 2009-10-16 20:00
It has indeed been a pleasure working with the Foundation. I do look forward to another year of great work, and pray that we can deliver much greater benefit to Scleroderma patients locally.
Report to administrator