Unite Against Scleroderma Event Scheduled For May 5th, 2013 PDF Print E-mail
Monday, 25 March 2013 21:46
Scleroderma is a rare, autoimmune, connective tissue disease characterized by the overproduction of collagen, which results in the thickening and hardening of the underlying connective tissues which support the skin, blood vessels, muscles, and internal organs such as the heart, lungs, and kidneys. It can limit a patient’s range of motion and ability to perform simple daily tasks due to fatigue, and the pain, swelling, and inflammation of the joints. With organ involvement, life can become particularly more challenging and life-threatening. There is no known cure for Scleroderma.

For our third year, the Scleroderma Care Foundation will be hosting its “Unite Against Scleroderma” Awareness Walk. Scheduled to start from 3:00pm, the Walk would be held on Sunday May 5th 2013 and cover one full lap around the Queen’s Park Savannah, Port of Spain. The Walk aims to raise the profile of Scleroderma in the public consciousness - aligned with our ongoing mission to assist Scleroderma patients, their families, and respective communities through mutual social and financial support, educational initiatives, the stimulation of research, and bringing forth a greater awareness of Scleroderma.

We would really like to encourage each of you to come out and join us on the day. Bring your family, children, co-workers and friends and walk with us on May 5th. T-shirts, Scleroderma silicone bands, and pins would also be on sale. All registered participants receive an event branded t-shirt as well.

Registration begins April 8st 2013, but you can download and fill out the registration forms today. Contributions for adults are $100 and for children 12 years and under, $50. For more information, please do call us at 756-3930 or 685-3213 or email us This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Click here to see some highlights from last year’s Walk, and join us on Facebook to continue the discussion and get further updates as we near the day. We do look forward to seeing you there.


 
More articles :

» Moves Toward Personalized Medicine for Scleroderma

researchers have received two five-year grants totaling $953,000 from the National Institutes of Health's (NIH) National Institute of Arthritis and Musculoskeletal and Skin Diseases to study , an autoimmune disease for which there currently is no...

» ArGentis Seeks More Funding After Obtaining Patent for ARG201 Therapy

ArGentis Pharmaceuticals LLC has received a patent for its scleroderma therapy while finalizing plans for a Phase IIb trial for the treatment known as ARG201.The patent comes nearly two years after it was developed by University of Tennessee Health...

» Calcinosis

Background:The Foundation has recently received some feedback from some members of the public asking for more information regarding the condition known as Calcinosis. As part of our efforts we sought to provide a brief, yet informative insight into...

» Lupus, A Widespread and Chronic Autoimmune Disease

Lupus is a widespread and chronic disease that, for unknown reasons, causes the immune system to attack the body’s own tissues and organs, including the joints, kidneys, heart, lungs, brain and skin. Lupus, an important disease for...

» Enhanced Survival Found With Early Detection of Scleroderma-Associated PAH

Early detection of incident systemic sclerosis–associated enhanced survival in a prospective cohort study of 131 patients from the multicenter PHAROS, according to data presented at the annual meeting of the American College of Rheumatology.The...

» Greater Global Cooperation and Collaboration in Scleroderma Research Required

Greater global cooperation and collaboration among Scleroderma researchers and clinicians would be all that is required to fuel a drive toward important discoveries and optimize outcomes for patients with this chronic, progressive, and often...

Comments  

 
0 #2 adelwyn 2013-03-26 21:28
Definitely looking forward to seeing you all there on the day :-)
Quote | Report to administrator
 
 
+1 #1 Lael Samuel 2013-03-26 13:54
Consider me there by default! lol! :lol:
Quote | Report to administrator
 

Add comment

Do feel free to leave your comments, as they would add value and knowledge to the community. However, please refrain from making any disparaging, uninformed, or unrelated comments. Thanks :)

Security code
Refresh