Unite Against Scleroderma Event Scheduled For May 5th, 2013 PDF Print E-mail
Monday, 25 March 2013 21:46
Scleroderma is a rare, autoimmune, connective tissue disease characterized by the overproduction of collagen, which results in the thickening and hardening of the underlying connective tissues which support the skin, blood vessels, muscles, and internal organs such as the heart, lungs, and kidneys. It can limit a patient’s range of motion and ability to perform simple daily tasks due to fatigue, and the pain, swelling, and inflammation of the joints. With organ involvement, life can become particularly more challenging and life-threatening. There is no known cure for Scleroderma.

For our third year, the Scleroderma Care Foundation will be hosting its “Unite Against Scleroderma” Awareness Walk. Scheduled to start from 3:00pm, the Walk would be held on Sunday May 5th 2013 and cover one full lap around the Queen’s Park Savannah, Port of Spain. The Walk aims to raise the profile of Scleroderma in the public consciousness - aligned with our ongoing mission to assist Scleroderma patients, their families, and respective communities through mutual social and financial support, educational initiatives, the stimulation of research, and bringing forth a greater awareness of Scleroderma.

We would really like to encourage each of you to come out and join us on the day. Bring your family, children, co-workers and friends and walk with us on May 5th. T-shirts, Scleroderma silicone bands, and pins would also be on sale. All registered participants receive an event branded t-shirt as well.

Registration begins April 8st 2013, but you can download and fill out the registration forms today. Contributions for adults are $100 and for children 12 years and under, $50. For more information, please do call us at 756-3930 or 685-3213 or email us This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Click here to see some highlights from last year’s Walk, and join us on Facebook to continue the discussion and get further updates as we near the day. We do look forward to seeing you there.


 
More articles :

» A Checklist For Scleroderma Patients

The has published a quite useful checklist of items, which has been found useful to patients. They have noted that the list is by no means comprehensive, but is intended as a guideline to assist Scleroderma patients, and was developed by patients...

» Scientists Identify New Genetic Region Associated with Scleroderma

New research supported, in part, by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) has identified a new genetic link to systemic sclerosis (also known as systemic scleroderma) and confirmed three previously...

» Sildenafil Reduces Raynaud's Frequency in Systemic Sclerosis Patients

Researchers in Europe reported that treatment with modified-release sildenafil significantly reduced the frequency of attacks of in patients with limited cutaneous systemic sclerosis (lcSSc), also known as . The double-blind, placebo-controlled...

» HRCT Useful In Sclerodermal Lung Disease Treatment

In a recent Reuters Health article, it was reported that the serial scanning of the thorax with (HRCT) is useful for monitoring the response of lung disease to therapy, according to a further report in the November .The report focused on 98...

» Moves Toward Personalized Medicine for Scleroderma

researchers have received two five-year grants totaling $953,000 from the National Institutes of Health's (NIH) National Institute of Arthritis and Musculoskeletal and Skin Diseases to study , an autoimmune disease for which there currently is no...

» Endothelin Drugs Benefit Those With Pulmonary Hypertension

Breaking news from has reported that recent research to block the effects of endothelin, a powerful substance that constricts blood vessels and stimulates cell growth, has led to successful treatment of and provides hope for treating other chronic...

Comments  

 
0 #2 adelwyn 2013-03-26 21:28
Definitely looking forward to seeing you all there on the day :-)
Report to administrator
 
 
+1 #1 Lael Samuel 2013-03-26 13:54
Consider me there by default! lol! :lol:
Report to administrator