What's Your Scleroderma Action Plan? PDF Print E-mail
Friday, 31 August 2012 17:28
Living with any serious disease or condition like Scleroderma, is without a doubt, difficult. It is not hard to understand either, that we often can lose sight of what is important, including our way. We may also fall into to a false sense of security about our condition, worsened by ignorance of the facts and the reality of our situation.

Today, we would like to encourage you ultimately have Faith and never lose hope. Faith and hope though, are meaningless without action. If you have not done so as yet, develop a long-term plan for dealing with your Scleroderma. With time and effort, a well formulated plan can help you understand and monitor your progress and quality of life.

Here’s a simple, yet effective framework for getting your plan together: Define, Discuss, and Determine!

Define:
As with most other plans, it is important to first develop a thorough understanding of your current condition. Start with what type of Scleroderma you have, along with its associated symptoms, complications, and more. Research and collate what you can. Our own website and many others can help tremendously in this regard.

Discuss:
Next, it would be important to determine what your options are. They should be based on what your current resources (financial, physical, human, or otherwise), capabilities, strengths, and weaknesses are. Talk to your doctor about available treatments and possible courses of actions. Feel free to talk to other Scleroderma patients, as many have tried different techniques and strategies for treating, coping with, and managing their Scleroderma.

Determine:
With an in-depth understanding of your condition and assembling what your available options are, decide upon and determine a plan of action for managing your Scleroderma that is uniquely suited and tailored to you.

Your plan should include a long-term goal and a number of contributing objectives. For instance, “I aim to live a full and healthy life, despite my Scleroderma”. Your objectives might then include;
  • I will exercise for 30 minutes a day, twice a week
  • I will have at least two servings of fruit and vegetables per day
Your objectives should be specific and measurable.

It should also include your desired course of action, and what you would do to ensure that you’ve successfully completed those actions, thereby measuring your success and ability to execute on your plan.

What’s Next?
Well, with your plan in hand. The only thing left to do is execute! Here are a couple tips for doing so.
  • Track your personal progress, daily, weekly, or monthly through progress reports. They could include dates of medical visits, appointments, test results, symptoms, physical changes, dietary habits, medications, and side-effects.
  • Adopt and maintain a pace that is suitable to you. Don’t overextend yourself, and do exercise your right to say “no”.
  • As mentioned earlier, maintain a regular exercise schedule, develop better eating habits, most importantly, get adequate rest. Check out a guideline for eating well with Scleroderma. Being able to execute would require that you’re mentally and physically capable of doing so.
  • Do take the medicines as prescribed by your doctor, being sure to follow the instructions provided. Be sure to visit to discuss progress and any ill-effects which may be experienced as a result.
  • Seek the support of family and friends in tracking and implementing your plan, as they do provide excellent emotional and physical support.
  • During execution, your experiences would bring about new learning. Use it to revise and improve upon your plan.
Without a cure today, Scleroderma is not going to disappear tomorrow, but with a plan and suitable coping strategies, you can indeed make a discernible and positive impact on your quality of life. Do start today!

 
More articles :

» The registry of the German Network for Systemic Scleroderma

N. Hunzelmann, E. Genth, T. Krieg, W. Lehmacher, I. Melchers, M. Meurer, P. Moinzadeh, U. Mu¨ ller-Ladner, C. Pfeiffer, G. Riemekasten, E. Schulze-Lohoff, C. Sunderkoetter, M. Weber, M. Worm, P. Klaus, A. Rubbert, K. Steinbrink, B. Grundt, R. Hein,...

» Scleroderma Study Identifies Roadblocks To Employment

In the United States, the work disability rate for people with , also known as systemic sclerosis, is two to three times that of people with some other rheumatic conditions, according to research data from investigators at The (UTHealth) Medical...

» Jefferson Researchers Identify Mechanism Behind Fibrotic Disorder

Scientists from the of Thomas Jefferson University are now several steps closer to understanding the mechanism behind a novel systemic fibrotic disorder that affects some patients with renal insufficiency who receive imaging contrast agents for...

» A System Out of Breath: How Hypoxia Possibly Contributes to the Pathogenesis of Systemic Sclerosis

T. W. van Hal, L. van Bon, and T. R. D. J. RadstakeReceived 20 May 2011; Revised 18 August 2011; Accepted 7 September 2011Systemic sclerosis (SSc) is typified by vascular alterations and immunological disturbances and fibrosis of the skin and...

» Genetics of Scleroderma: Implications For Personalized Medicine

Significant advances have been made in understanding the genetic basis of systemic sclerosis (scleroderma) in recent years. Can these discoveries lead to individualized monitoring and treatment? Besides robustly replicated genetic susceptibility...

» Adult Stem Cells Are Helping Scleroderma Patients

Dr. Richard Burt and colleagues at Northwestern University have just published a new study in that provides more evidence for the success of adult stem cell transplant in treating System Sclerosis ().Ten patients were treated with their own adult...