Scleroderma

For our second year running, the Scleroderma Care Foundation will be hosting its “Unite Against Scleroderma” Awareness Walk around the Queen’s Park Savannah, Port of Spain. Scheduled to start from 3:00pm, the Walk would be held on Sunday May 6th 2012 and cover one full lap.

The Walk ultimately aims to raise the profile of Scleroderma in the public consciousness - aligned with our ongoing mission to assist Scleroderma patients, their families, and respective communities through mutual social and financial support, educational initiatives, the stimulation of research, and bringing forth a greater awareness of Scleroderma.

We would also be aiming to highlight many of the challenges and needs of those who struggle to cope with Scleroderma daily, and that of the Foundation itself in seeking to secure wider support for its own initiatives and efforts to serve Scleroderma patients.

At the Walk’s end, all participants would be treated to light refreshments, a brief presentation from the Foundation’s President and co-founder Adelwyn Holder, other guest speakers, and performances by specially invited musical guests – all to be later announced.

As we are aware, Scleroderma is a rare, autoimmune, connective tissue disease characterized by the overproduction of collagen, which results in the thickening and hardening of the underlying connective tissues which support the skin, blood vessels, muscles, and internal organs such as the heart, lungs, and kidneys.

Scleroderma can limit a patient’s range of motion and ability to perform simple daily tasks due to fatigue, and the pain, swelling, and inflammation of the joints. With organ involvement, life can become particularly more challenging and life-threatening.

We would really like to encourage each of you to come out - bring your family, children, and friends - and walk with us on May 6th. T-shirts, Scleroderma silicone bands, and pins would also be on sale. All registered participants receive a participatory package inclusive of a branded event t-shirt.

Registration begins April 1st 2012, but you can download and fill out the registration forms from today. Registration costs for adults are $100 and children (under 12) $50. For more information, please do call us at 756-3930 or 685-3213 or email us This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

See below, some of the photos from last year’s Walk, and join us on Facebook to continue the discussion and get further updates, as we near the day :)

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To view the rest of the photos, visit our gallery here.