Shyanne Adams Heading To London Courtesy Of The Make-A-Wish Foundation PDF Print E-mail
Friday, 09 December 2011 17:31
It wasn't until Shyanne Adams started feeling better recently that she realized just how hard the past year has been. “I think I was in shock the whole year,” said the 14-year-old Eagle Valley Middle School eighth-grader. “I was depressed. I slept a lot.”

She first noticed something was wrong when her fingers started turning blue, almost black, and her hands and feet started to swell. Doctors in Reno referred her to specialists at the Packard Children's Hospital at Stanford who diagnosed her with Scleroderma.

Shyanne underwent chemotherapy to stop the disease from moving to her oesophagus and kidneys, making monthly trips to Stanford for treatment. It was hard for her sister Shania, older by just 10 months, to watch.

“(Shyanne) was weak all the time,” Shania remembered. “I wondered, how could it be her? She's the younger sister.” Their mother, Shona, struggled with her daughter's illness as well. “It was hard on me,” she said. “It was scary and hard to deal with.”

Although Shyanne will live with the disease the rest of her life - needing to carefully monitor her heart, kidney, stomach and other organs as well as her joints for rheumatoid arthritis - she is now in remission. Just as the family suffered together during the past year, they also will celebrate Shyanne's recovery as a family.

The Make-A-Wish Foun­da­tion, which grants the wishes of children with life-threatening diseases, is giving the family a Christmas trip to London. “I'm so excited,” said Shy­anne, who will be flying in a plane for the first time when she begins the trip Sunday with her mom, sister and dad, John.

They have planned to visit the tomb of King Henry III, Big Ben, Harry Potter attractions and maybe a side trip to Paris.

Shania is also interested in checking out the historic sites. “I love the whole Victorian ages,” she said. The family will officially be presented the trip during the third annual National Believe Day at Macy's in the Meadowood Mall in Reno.

Shona said the vacation is well-deserved after Shy­anne's perseverance through treatment. “Even with all the needles and all the poking, she made the honor roll,” Shona said. “She was a trouper through all of it.” And while she's grateful for the opportunity, she also is a little overwhelmed.

Source: NevadaAppeal

 
More articles :

» GERD and Scleroderma

is an autoimmune disease that causes the skin, and sometimes other organs of the body, to become hard and thick. In the diffuse form of scleroderma, the esophagus and gastrointestinal tract are often affected. GERD, or gastroesophageal reflux...

» Thank You

The Scleroderma Care Foundation launched its one month ago on September 1st, and we did so with several aims in mind. Firstly we sought to provide patients, their families, and friends with relevant and timely information on Scleroderma, tips for...

» New Formulation of PAH Medication Is Now Available

Epoprostenol for Injection, an improved formulation of epoprostenol that is stable at room temperature, is now commercially available, according to the drug's maker, Actelion Pharmaceuticals US, Inc., of South San Francisco, Calif.The product is...

» Rheumatologist Receives Scleroderma Foundation's Lifetime Achievement Award

In a recent article, it was reported that ,  Gerald P. Rodnan Professor of Medicine, , received the 's Lifetime Achievement Award in recognition of his service to the community. The award is the foundation's highest honor and is presented to...

» How To Know If Your Body Is Acidic?

It can be really crucial to remember that the are normally based on the quantity of acids we have in our body. These signs and symptoms are grouped according to it order of severity. Much less severe symptoms may well indicate that you simply are...

» 7 Fruits and Veggies That Keep You Young

If you want to defy age, start from the inside. These seven fruits and vegetables contain a variety of nutrients that smooth skin, sharpen your mind, beat disease, and more.1. Romaine lettuceWhy you'll glow: Six leaves provide more than 100 percent...