The Scleroderma Foundation Teams Up with Traitwise PDF Print E-mail
Tuesday, 16 February 2010 14:40
The Scleroderma Foundation has teamed up with Austin, TX company, Traitwise Incorporated, to launch a unique survey to poll thousands of scleroderma patients and their caregivers. Data from the survey will be shared with researchers nationally and internationally in an effort to improve understanding and treatment of scleroderma.

By gathering answers about everything from symptoms to family history of disease to quality of life - and then comparing every answer to every other answer - the survey mechanism promises to tease out previously unsuspected patterns that can lead to new diagnostics, treatments, and even a cure for this chronic autoimmune disease that afflicts approximately one in every thousand people.

"As common as it is and despite the heroic efforts of clinicians and researchers, scleroderma still isn't well understood," said Scleroderma Foundation CEO Robert Riggs. "The Traitwise survey gives us a chance to assemble and analyze more pieces of the puzzle and really move research forward."

The unique Traitwise approach to data security allows users to volunteer information without fear that the information will be shared or used to identify them. Once it's made anonymous, data will be made available to researchers through the Scleroderma Foundation. "We understand that the information we seek is sensitive and personal," said Executive Vice President Michael Simpson of Traitwise. "So we answer every user's privacy expectation with an iron-clad commitment to protect their personal information."

Source: MMD Newswire
 
More articles :

» Potential Therapy for Scleroderma Lung Disease Uncovered

Investigators, partially supported by the , have found that a deficiency in the protein caveolin-1 (cav-1) is linked to the development of, the scarring of lung tissue that causes disability and death in people with . The scientists, from the...

» An Approach to the Treatment of Scleroderma

Systemic sclerosis is unique among the rheumatic diseases because it presents the challenge of managing a chronic multisystem autoimmune disease with a widespread obliterative vasculopathy of small arteries that is associated with varying degrees of...

» How To Know If Your Body Is Acidic?

It can be really crucial to remember that the are normally based on the quantity of acids we have in our body. These signs and symptoms are grouped according to it order of severity. Much less severe symptoms may well indicate that you simply are...

» Quality Indicator Sets For Scleroderma

Despite the increasing awareness of Scleroderma (SSc), it continues to have a detrimental effect of the quality of health and lives of those with it. The medical community has recognized that although early treatment of can have a substantial...

» Study Indicates Scleroderma Mortality Rates Being Underestimated

patients have a significantly reduced life expectancy that is most likely being underestimated, delegates have heard. Most studies on scleroderma survival are based on prevalent cohorts, where no limit is placed on disease duration at the time of...

» Scleroderma May Be Initated By Cancer

has reported that researchers at have discovered that some cases of are likely to have been initiated by Cancer.  In a landmark paper published in Science, researchers focusing on a select group of patients with both Scleroderma and Cancer,...