Management PDF Print E-mail

Our Management Team or Executive Committee is presently responsible for the daily operations of the Scleroderma Care Foundation, realizing its vision, and similarly ensuring its growth and future success.

Adelwyn Holder, Scleroderma Care Foundation Founder and PresidentAdelwyn Holder, Co-Founder & President
Adelwyn Holder currently holds a BA (Hons.) in Business Management from the Anglia Ruskin University and is presently pursuing his post graduate degree, an MBA in Project Management from the Henley Business School. His start with the Scleroderma Care Foundation began as its Co-founder and President in 2008.

This was several years after his own mother and other Co-founder, Susan Le Gendre was diagnosed with Scleroderma in 2004 and having recognized that there were other persons living with Scleroderma in Trinidad & Tobago lacking the necessary support needed to effectively cope with the disease.


Susan Le Gendre, Scleroderma Care Foundation Founder and Vice PresidentSusan Le Gendre, Co-Founder & Vice President
Susan Le Gendre is currently a retired Teacher having been employed for twenty three years with the Ministry of Education. Susan has also worked alongside teaching colleagues on Social and Cultural, Sports and Music Festival Committees. She retired from her Career in Teaching in 2003 after major surgery to the spine.

In 2004 she was diagnosed with Diffuse Systemic Scleroderma. This diagnoses completely undermined life-long plans as she gradually experienced loss of independent functioning, needing assistance for some seemingly simple tasks. God’s love and her family became her source of inspiration and heightened her desire to fight for her life. Susan was instrumental in Co-founding the Scleroderma Care Foundation with Adelwyn.


 
More articles :

» 7 Natural Ways to Manage Rheumatoid Arthritis Symptoms

(RA) is often a frustrating disease. It can have all the bewildering symptoms of an autoimmune disease, as well as the ups and downs of a chronic pain condition. Luckily, even on bad days there are steps you can take to help counter your rheumatoid...

» Genetics of Scleroderma: Implications For Personalized Medicine

Significant advances have been made in understanding the genetic basis of systemic sclerosis (scleroderma) in recent years. Can these discoveries lead to individualized monitoring and treatment? Besides robustly replicated genetic susceptibility...

» HLA Class II Haplotype and Autoantibody Associations in Children

L. R. Wedderburn; N. J. McHugh; H. Chinoy; R. G. Cooper; F. Salway; W. E. R. Ollier; L. J. McCann; H. Varsani; J. Dunphy; J.North; J. E. DavidsonPosted: 12/19/2007; Rheumatology. 2007;46(12):1786-1791. © 2007 Oxford University PressObjectives: To...

» Joint Involvement And Aggressive Systemic Sclerosis

Clinical joint involvement is strikingly common in patients with systemic sclerosis () and is associated with a more active and severe disease phenotype, according to an analysis of the world’s largest systemic sclerosis (SSc) registry. proved to...

» Small Intestinal Bacterial Overgrowth A Problem For Scleroderma Patients

More than a third of patients with systemic sclerosis and intestinal symptoms have an increase in gastrointestinal tract bacteria, an alteration in the type of gut microbes present, or both, based on data from a French study presented at the annual...

» Systemic Sclerosis and Multiple Cancers of the Female Genital Tract

Georgios Androutsopoulos, Georgios Adonakis, Athanasios Tsamandas, Andreas Andonopoulos, Georgios Decavalas.Background: Systemic sclerosis is a rare, chronic, multisystem, autoimmune disease. There is an overall increased risk of malignancy in...