Management PDF Print E-mail

Our Management Team or Executive Committee is presently responsible for the daily operations of the Scleroderma Care Foundation, realizing its vision, and similarly ensuring its growth and future success.

Adelwyn Holder, Scleroderma Care Foundation Founder and PresidentAdelwyn Holder, Co-Founder & President
Adelwyn Holder currently holds a BA (Hons.) in Business Management from the Anglia Ruskin University and is presently pursuing his post graduate degree, an MBA in Project Management from the Henley Business School. His start with the Scleroderma Care Foundation began as its Co-founder and President in 2008.

This was several years after his own mother and other Co-founder, Susan Le Gendre was diagnosed with Scleroderma in 2004 and having recognized that there were other persons living with Scleroderma in Trinidad & Tobago lacking the necessary support needed to effectively cope with the disease.


Susan Le Gendre, Scleroderma Care Foundation Founder and Vice PresidentSusan Le Gendre, Co-Founder & Vice President
Susan Le Gendre is currently a retired Teacher having been employed for twenty three years with the Ministry of Education. Susan has also worked alongside teaching colleagues on Social and Cultural, Sports and Music Festival Committees. She retired from her Career in Teaching in 2003 after major surgery to the spine.

In 2004 she was diagnosed with Diffuse Systemic Scleroderma. This diagnoses completely undermined life-long plans as she gradually experienced loss of independent functioning, needing assistance for some seemingly simple tasks. God’s love and her family became her source of inspiration and heightened her desire to fight for her life. Susan was instrumental in Co-founding the Scleroderma Care Foundation with Adelwyn.


 
More articles :

» Survival in Pulmonary Hypertension Associated With the Scleroderma Spectrum of Diseases

Stephen C. Mathai, Laura K. Hummers, Hunter C. Champion, Fredrick M. Wigley, Ari Zaiman, Paul M. Hassoun, and Reda E. GirgisObjective. Pulmonary hypertension (PH) is an important cause of mortality in systemic sclerosis (SSc), where it can be...

» The Secrets of An Ancient Chinese Remedy, Revealed

For roughly two thousand years, Chinese herbalists have treated malaria using a root extract, commonly known as Chang Shan, from a type of that grows in Tibet and Nepal. Recent studies suggest that , a compound derived from the extract’s bioactive...

» The Mississauga Support Group To Host Annual Fundraiser

The Mississauga Support Group of the Scleroderma Society of Ontario will host its annual fundraising dinner and dance gala on April 2 at the Oasis Convention Centre. Funds raised will go to the Scleroderma Society of Ontario to fund research,...

» Women At Higher Risk For Autoimmune Diseases

In a recent article on , it was reiterated that women are at a significantly higher risk of contracting an autoimmune disease than men, according to an expert in the field. Dr Vivian Pinn, director of the National Institutes of Health recently...

» Egr-1: A Target for Scleroderma Therapy

Two separate research groups funded by the (NIAMS) have discovered that the molecule EGR-1 (early growth response 1), which regulates gene expression, plays a central role in the development of fibrosis, a condition in which organ-supporting tissue...

» Positive Phase II Results for AIMSPRO In Scleroderma Announced

announced yesterday, positive results from its Double-Blind Placebo-Controlled Phase II Clinical Study evaluating the safety and tolerability of AIMSPRO given as a monotherapy to patients with Late Stage Established Diffuse Cutaneous Systemic...