Management PDF Print E-mail

Our Management Team or Executive Committee is presently responsible for the daily operations of the Scleroderma Care Foundation, realizing its vision, and similarly ensuring its growth and future success.

Adelwyn Holder, Scleroderma Care Foundation Founder and PresidentAdelwyn Holder, Co-Founder & President
Adelwyn Holder currently holds a BA (Hons.) in Business Management from the Anglia Ruskin University and is presently pursuing his post graduate degree, an MBA in Project Management from the Henley Business School. His start with the Scleroderma Care Foundation began as its Co-founder and President in 2008.

This was several years after his own mother and other Co-founder, Susan Le Gendre was diagnosed with Scleroderma in 2004 and having recognized that there were other persons living with Scleroderma in Trinidad & Tobago lacking the necessary support needed to effectively cope with the disease.


Susan Le Gendre, Scleroderma Care Foundation Founder and Vice PresidentSusan Le Gendre, Co-Founder & Vice President
Susan Le Gendre is currently a retired Teacher having been employed for twenty three years with the Ministry of Education. Susan has also worked alongside teaching colleagues on Social and Cultural, Sports and Music Festival Committees. She retired from her Career in Teaching in 2003 after major surgery to the spine.

In 2004 she was diagnosed with Diffuse Systemic Scleroderma. This diagnoses completely undermined life-long plans as she gradually experienced loss of independent functioning, needing assistance for some seemingly simple tasks. God’s love and her family became her source of inspiration and heightened her desire to fight for her life. Susan was instrumental in Co-founding the Scleroderma Care Foundation with Adelwyn.


 
More articles :

» Sonographic Evaluation of Pediatric Localized Scleroderma Preliminary Disease Assessment Measures

Background: Our earlier work in the ultrasonograpy of localized scleroderma (LS) suggests that altered levels of echogenicity and vascularity can be associated with disease activity. Utrasound is clinically benign and readily available, but can be...

» Vitamins for Scleroderma

is a class of diseases in which your skin and organs tighten and harden. This autoimmune condition occurs when your body produces an excess of , a protein that comprises your connective tissues. Scleroderma may affect the skin on your hands and...

» A Scleroderma Fact Sheet

Below, is a very useful fact sheet on Scleroderma. Making for much easier reading and reference, this fact sheet highlights what Scleroderma is, how is it diagnosed, who gets it, complications which may arise, and how it can be treated. Feel free to...

» HRCT Useful In Sclerodermal Lung Disease Treatment

In a recent Reuters Health article, it was reported that the serial scanning of the thorax with (HRCT) is useful for monitoring the response of lung disease to therapy, according to a further report in the November .The report focused on 98...

» A New Marker of Silent Cardiovascular Disease in Diffuse Scleroderma

Patients with diffuse systemic sclerosis (SSc) and no clinical evidence of (CVD) may, in fact, have subclinical CVD and , and it is detectable. This is the conclusion of a small pilot study from Italy, which showed that elevated plasma levels of ...

» Apoptosis Modulation as a Promising Target for Treatment of Systemic Sclerosis

St´ephane Chabaud and V´eronique J. MoulinReceived 1 June 2011; Revised 6 July 2011; Accepted 6 July 2011Systemic sclerosis (scleroderma, SSc) is a heterogeneous disease which develops into three forms: limited, intermediate, and diffuse. The...